Archive - Oct 2007

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October 26th

Krissi's picture

Exciting News!

Tagged:  

Hello, World.

I know I haven’t been here much lately, but I promise, I think about blogging every day! Thinking counts, doesn’t it?

Exciting News! I was approached recently by an internationally recognized, industry-leading website that provides health-related information on the web and asked to be one of their very first bloggers for their new website expansion. I was not only surprised, but also honored to be invited! They found both of my websites and approached me after reading them. The content of the new blog will be based on subject matter which relates to both my MyKidney.com and Krississippi (dot) com websites, but in a completely new/different way. I think everyone will be pleasantly surprised. I will write more about this new project as soon as the blog launches and of course I’ll let everyone know the URLs and feeds. What an opportunity to have come my way, especially when I wasn’t searching for it!

October 22nd

Krissi's picture

My Former Life is no longer My Llife: So, where do I go from here?

I've had a bit of a down week - from the beginning of last week until now. Things are a bit jumbled in my head at the moment, so figuring out where I should be, or even WHO I should be, remands garbled in my mind. My thoughts fill my brain like sticky molasses - making even the most deliberate pondering of any one thing, next to impossibly slow. My brain feel mushy and confused.

Where is the MyKidney blog going? How can I continue to blog about things that are much in my past... and passing further away with every minute. YES there are a still a world's worth of words to discuss all things "kidney". Am I the person to lead these discussions when my life feels as if its entering into new places with new opportunities? Should I be here?

I've always said that kidney disease and kidney failure don't define me, they are merely a part of me, along with all the other things in my life. I'm wondering now if I want to forget the kidney part of me all together. I have foolish dreams of being one of those people... one of those other people...

Still, here I am. On the one hand, I find myself scrambling around, frantically looking for my running shoes to get as far away from "kidney stuff" as possible. On the other - knowing my life will never not be about kidney disease keeps me a bit grounded. No matter how long I live or if my transplant lasts months or years (or decades as I secretly hope for!) My new kidney is my life. I can't forget it because my kidney is ME.

... where do I go from here?

I am no longer a patient. I no longer have Chronic Kidney Disease, I am not in End Stage Renal Disease, I am not on dialysis. I'm a post transplant recipient - tad da! The end. Goodbye!

I don't have daily dialysis stories to share or CKD advice to offer. I think that for the first time in my life I'm feeling confused about my own health and how to relate it to WHO I AM. For so long MY HEALTH has been the biggest part of ME.

So, WHO AM I NOW in my "nearly perfected fixed" condition?

As my life will get more and more normal and my kidney problems less and less important, should I stay (and blog?) or should I find other passions to drift to. Would it be fair for me to blog about things I will soon only know in a past-tense format? Is it right to assume that my past experiences might be like anyone who is experiencing similar things now? I don't know.

A big part of me wants to cool down and take a break from thinking about these things - While an equally big part of me wants to push ahead, continue to reach out and educate. Meet others who might need encouragement and friendship from someone whos "been there".

So, who am I? What is My Kidney Blog's future? Maybe you can help me figure that out...

October 13th

Krissi's picture

It's a bouncing baby... KIDNEY!

If you've been keeping up with my hoo-hoo posts, maybe you'll be happy to know that I've decided to move all topics relating to my hoo-hoo over to my Krississippi (dot) com blog. It seems to be a little more appropriate to spare my readers here from reading about "MyHoo-Hoo" which really has nothing to do with "MyKidney"!

In the meantime, maybe you'll enjoy this. While at the hoo-hoo doctor I got an ultrasound of my womanly parts, but I talked the ultrasound tech into taking a picture of my transplanted kidney! I'm pretty sure she thought I was nuts, (maybe because I was getting all excited about having a picture of a kidney and not so much interested in looking at hoo-hoos or babies) but I got my little picture. She didn't take the best picture, but then again I suppose she's used to looking at things that look less like kidneys are more like babies.

Here's my bouncing baby kidney. Isn't it so cute?

Its a bouncing baby... KIDNEY!

October 9th

Krissi's picture

'Normal' means NORMAL!? Really?

Finger Food It started with the "normal" diet thing:

So, what you mean, Mr. Doctor, when you say I can "eat normally" is that I can eat what, exactly? Exactly how does someone who has been on one renal diet (first low protein pre-ESRD, and then high protein during ESRD) or another for more than half her life eat normally?!

Is there a list of foods I can have?

What? I can eat what I want? Is there someone who can tell me what I want... 'cause someone's been telling me what I wanted to eat for the last 15 years. Is there a list, possibly? WHERE IS MY DIETITIAN WHEN I NEED HER!

I still struggle with the "normal" aspect of my newly found health, and Falling into Healthy Eating isn't as easy as it might seem (NOTE: I'm totally going to be making that recipe as it contains three main ingredients that I've not been "allowed" to eat for a very VERY long time!!!) Doing things 'normally' was the last thing I thought I'd be worried about! Truly, I have no idea what 'normal' is - but, right now I'm thinking my daily "normal" is probably not... i.e. eating Campbell's Select Healthy Request Savory Chicken and Long Grain Rice Soup every night (with crushed up Classic Fritos Corn Chips Mmmm) and a Starbucks Espresso Frappuccino with EXTRA WHIPPED CREAM every day - the Starbucks addiction is the worst, no?

And I'm normal in other ways? How can this be? I've never been 'normal' so maybe I'm just having an abnormal moment when you just think I'm normal. Yes, surely that must be it.

I keep wondering how long this 'normal' stuff will last. I sure hope it lasts a long time, although it does take some getting used to. Not living my life around medications, doctors appointments, dialysis treatments and daily exhaustion is strange. What should I be doing with all my time? What do NORMAL PEOPLE do with all their time?

I'm still trying to figure out 'normal'... which seems to be the most 'normal' thing I've done all day.

October 6th

Krissi's picture

A story of Giving Life: Twice

If you know me, you know I'm not a publicly emotional person. In fact, I guard my emotions very carefully, especially when it comes to death - because I've lost so many close to me in the last few years. I've lost too many friends and fellow kidney failure patients who were waiting for kidney transplants... that didn't come in time.

I was surprised by my own emotions, today. Taken completely by surprise.

A few days ago my friend told me about a little boy who lived in her apartment building who had passed away. She didn't know many exact details of his death, but assumed that his life-long disabilities had most likely contributed to his passing. Even though she didn't know his family well, she recalled for me her memory of the boy: always smiling, saying "Hi! Hello! How ah'ya?" to anyone who passed, while he sat enjoying the outdoors in his chair. I got an immediate picture in my mind of this child and understood the positive energy he must've spread to anyone who passed him.

Today was the little boy's memorial service. I offered to watch my friend's two kids (she has a 6.5 year-old daughter and a 6 week-old son) while she attended the service in support of the family and others touched by his life and death. While I spent several hours at her home with her kids having fun, the thought occurred to me more than once how wonderful gifts children really are, how lucky we are to be parents, and how difficult it must be to lose a child.

After the service, my friend came home and we packed the kids up so she could drop me off at my next destination. While we drove she described the boy's memorial - filled to the brim with children and decorated like a kids party - complete with a special play area just for kids during the service. The way she described it seemed to mean that the service not only focused on the boy who had passed, but on ALL the children who had known and loved him. She said she wished she'd known it would've been so happy and kid-friendly, because she would've brought her own children.

Then she showed me the memorial program. On the front was a picture of the little boy with his full name, the dates of birth/death and the popular nick-name "Papi" that everyone knew him by. He had an enormous smile in the picture, and again I felt as if his very positive energy drew me in. I flipped to the inside and began to read the obituary.

This is the part where I burst into tears. The tears came so fast they stung my eyes with sudden emotion. All because of this, the most important part of the obituary and maybe, of Papi's life:

"Continuous prayers are requested for the 5 children who received hope through his organ donation."

To know that these strangers, who have loved and untimely lost their beautiful child, made the undeniable difficult decision to save the lives of five other children, speaks more to my heart than I can find the words to express. I'm emotionally stunned and numb, even as I write this post with the tears still streaming down my cheeks.

I think this is the biggest, hardest, jagged pill-of-a-lesson human beings should try to strive to understand: If parents can grasp how to unselfishly give, even during their most anguished and grief-stricken moments, then humanity still has hope. If we could collectively identify with these parents, and with the other thousands of loved ones in this country every day who make similar decisions, then we just might have a chance to understand the meaning of life.

Papi and his parents gave us a gift: Not only in sharing Papi with the world and all his life touched, but in the decision to donate his organs.

Thank you, Papi's parents. From an organ recipient, to the parents of a boy to whom they gave life - twice.

October 4th

Krissi's picture

Another hoo-hoo post (and you thought this site was about kidneys)

Remember when I first got home from my transplant only to get re-admitted 10 days later due to horrific pain? Do you remember why I was in that pain? No, it didn't turn out to be a pain in my kidney, but instead, a pain in my hoo-hoo. Lucky me!

Initially I was seen by a doctor who is part of the Tampa General Hospital/USF team, just in case I needed to have something done ASAP (in June/July it would've needed to be done at TG with me admitted on the transplant floor). After my "case" was determined to be not an urgent matter, I was given the option of continuing to have the issue(s) "taken care of" in Tampa, or with my own hoo-hoo doctor closer to home. I decided to come back to my usual doctor, of course. I called 6 weeks ago to make the appointment - however, there weren't any for awhile. Meanwhile, I've been in a holding pattern waiting for my appointment date to arrive - 'awhile' has passed and tomorrow morning I'm going in to get my hoo-hoo checked out. Hopefully there will be a (quick) semi-simple solution.

Plus, while I'm there I really need to discuss my birth control options 'cause supposedly I can get preggers, now that no longer have kidney failure (although I really don't think I really can get pregnant (for other reasons) but aren't those always the famous last words?!)

Since June I've had the same continuing side effects (bleeding, abnormal 'periods' [if that's what they could be called] and bloating). Supposedly all of this is being caused by uterine fibroids. At least I don't have the pain I did originally, although the rest of the effects haven't done much help for my waning sex life. BOO.

I hate going to the hoo-hoo doctor. I'd rather have the giant needles of hemodialysis stuck in my arm just for kicks and giggles than to go THERE to do THAT with YOU KNOW WHO.

October 3rd

Krissi's picture

Here I am!

Goodness, has it really been since the 15th of September that I've blogged here? Boy I need to change that trend and write more often!

Life has been busy - In-between all the usual stuff (parenting, traveling, blog-reading and a mishmash of general daily living) I've managed to get a few things done... around the house, but apparently not around the blog. I still need a Drupal expert to help out! Its coming down to the fact that I'm just not taking (making?) the time to learn what I need to in order to get the site back to its usual pretty self.

As far as the kidney goes - Its A-OK. I had my last LifeLink appointment until December 11th yesterday and all my labs are 100% normal. The only two things in the 'abnormal' column was the MCH (high by one point) and the MPV (low by three-tenths of a point) I suppose I should look up what those values mean?

Its strange to see that (clinically) I'm so "normal"... Sometimes I think my eyes must be tricking me or the printout must surely be wrong - but, nope! That's me - the "normal" one!

A good side note - I've met a lot of people in the last couple of weeks who's lives have recently become entangled by kidney problems. It's almost surreal how life brings us together with so many with whom we share common ground. I feel as though I've been handing out MyKidney.com calling cards left and right (and not so much because I just got some new ones, either!) I hope my newest friends will enjoy the blog (albeit its current disorganization) and find comfort in knowing that there are others out here who understand.

I'll aim for a more interesting update by the end of the week - and, as always, suggested topics are always welcome!