Archive - Apr 2006

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April 26th

Krissi's picture

what i like and what i don't - about hospitals

*sigh* back to the hospital in less than 4 hours and I can't sleep.

its strange to admit but there are actually things about being in MORTON PLANT hospital in CLEARWATER, FL that i like. i like the comfy air-beds. i like the worry-free time without my son (i.e. a parenting break.) i like the fact that jammies are socially acceptable, even encouraged, to be worn round the clock. i like having no expectations other than to sleep, eat, watch television and eat ice chips. i like the drugs - yes, i admit, i like the pre-surgery and post-surgery drugs... the ones they give you before the pain is administered, and after it has happened and before you can really fully realize that pain exists and you have to start asking again for something to kill the pain. i like dialysis at the hospital because they let you lay in your bed instead of sit in a very uncomfortable chair like i usually do three times a week. i absolutely love the warm blankets - piles and piles of them. at my hospital i also like the food because you can order it from a menu, all hours of the day, and they bring whatever you want and it actually tastes good. the food is better than my own cooking (which isn't saying much because i can't cook!) i like joking with the nice nurses and flirting with the cute boy nurses. i like most of the doctors. i do like special attention, like a trip out the door in a wheelchair so i don't have to walk. i like the flowers my mother always sends and the stuffed animals ken always buys. i like seeing dot, my doctor's nurse, who usually only works at the hospital and is hardly ever at the office... she has a smile that could make me feel better instantly.

there are aspects of the hospital that i don't like, either. like, having a need to go there in the first place. surgery, in general, sucks no matter what body part is submitted to it. i don't like incompetent nurses who screw up my medication doses after i've printed off five different copies of my medication list and given it to everyone, as well as personally stapled it to my own chart. or nurses who don't understand the concept of phosphorous binders or even the concept of "take only as needed with meals and food". i don't like having to share a room - especially with a really old patient, or a really deaf patient who turns up the tv at two in the morning, or a patient who runs to the bathroom every five minutes to throw up, or someone who smells or has bad hygiene, or someone who has every freaking member of their family, including all their second cousins, visit them and then stay two hours past visiting hours. i also don't appreciate patient/roommates trying to force pleasant conversation upon me when i'm obviously trying to sleep, or eat, or read, or, well, pretty much at any time - i like to be left alone damnit! i don't like hospital gowns and refuse to wear them past the time in which they are not absolutely necessary; and no i will not take off my underpants no mater how insistent you are; and yes you go ahead and get an order from the doctor saying its ok for me to wear them during surgery (because he will say yes - they're only operating on my arm, not on my hoo-hoo) i also don't like being told "we have to get an order from your doctor for...(insert tylenol for a headache, neosporin for a scrape, benadryl for an allergic reaction to the tape they cover me with, etc. here)" i don't like when someone forgets to remind the staff that i'm allowed to be on a 'regular' diet instead of a 'renal' diet (the renal diet is bland and just plain disgusting).

Krissi's picture

*SIGH*

Tagged:  

... and Dottie B. passed away on Monday, sometime after her treatment. It comes in threes, right? Who's next...

April 25th

Krissi's picture

One Last Hospital Stay

Tagged:  

I am having one last stay (hopefully the last for awhile!) at Morton Plant on Thurs/Friday. I'm having another surgery on my fistula to remove the enlarged part of my vein and have a small graft placed to bridge the gap. I'm staying overnight so the next morning I can have dialysis in the hospital to check-out the funtion of my fistula and make any revisions necessary before being discharged.

I'm going to try to get the nurses to take pictures of this surgery just like I did on one of my last ones. To view the images from my last proceedure, click here.

Wish me luck!

April 24th

Krissi's picture

Test Results

At today's doctor's appointment I found out a few interesting facts about the heart tests I had week before last. My heart is slightly enlarged and not pumping as much blood as it should. I also have one leaky valve (it only leaks a little, though) and one of the chambers of my heart is the wrong size, I think the doctor said too small. Nothing to panic about, nothing dangerous, just something to keep an eye on. I've never had any heart tests done before so all I know maybe I've had this all my life. Or it could be related to kidney failure and hemodialysis. Next week I have to go back for a stress test and two other tests that I can't remember what they are. Then I might be referred to a cardiologist to be monitored.

Krissi's picture

Steven C.'s Memorial and a Poem

Tagged:  

I attended Steven C.'s memorial service on Sunday evening. It was a small affair which was to be expected since Steven's family lives out of state and many couldn't attend. It was actually kind of nice to have a small group - Steven's cousin (who was like a brother to him) passed around copies of sheets from journal entries Steven had hand-written in the months before he passed. One of the hardest entries was to read the carefully hand-copied poem that seemed to speak directly to all of us who cared about him:

If I'm Not Here Tomorrow

When tomorrow starts without me and I'm not here to see.
If the sun should rise and find your eyes all filled with tears for me,
I wish so much that you wouldn't cry the way that you did today,
while thinking of the many things we didn't get to say,
I know how much you love me,
as much as I love you,
and each time you think of me I know
you'll miss me too.

But when tomorrow starts without me, please try to understand
that an angel came and called my name
and took me by the hand
and said my place was ready in heaven far above,
and that I'd have to leave behind all those I dearly love.
But as I turned to walk away, a tear fell from my eye,
for all my life I'd always thought I didn't want to die.
I had so much to live for and so much yet to do.
It seemed almost impossible that I was leaving you.

I thought of all the yesterdays, the good ones and the bad.
I thought of all the love we shared and all the fun we had.
If I could relive yesterday, I thought for a while,
I'd say good-by and kiss you and maybe see you smile.
But then, I fully realized that this could never be,
or emptiness and memories would take the place of me.

And when I thought of worldly things I'd miss come tomorrow,
I thought of you and when I did my heart was filled with sorrow.
But when I walked through "Heaven's Gates" I felt so much at home,
God looked down on me from his great golden throne and said,
"This is eternity and all I've promised you, today your life on earth is past,
but here it starts a new;
I promise no tomorrow's but today will always last
since each day's the same there's no longing for the past.
But though I promise no tomorrow's on earth to anyone,
so many live each day so sure of seeing one more sun.
Yet, each one knows that I will call and none knows just when
but they never stop and pray and ask forgiveness for their sin,
and many I have turned away so sad at heaven's gate.
For when I called they weren't prepared and it was much too late.
But you have been so faithful, so trusting, and true
though there were times you did something's you knew you shouldn't do.
But you have been forgiven and now at last you're free
so won't you come and take my hand and share my life with me..."

So when tomorrow starts without me, don't think we're far apart,
for everytime you think of me, I'm right here in your heart.

Author: Jessie Warren

April 14th

Krissi's picture

Heart Tests

Today I had some tests done to look at the function of my heart and lungs. I had a nuclear lung scan, a chest x-ray, an ECHO cardiogram, and and EKG. On May 2nd I go for two more tests. All of these tests have to do with transplant requirements, but also because I've had a lot of shortness of breath lately.

April 12th

Krissi's picture

Transplant - The Beginning

I decided this week that I'm pretty sure I'm ready to begin the process to get a kidney transplant. This has been a long hard road to reach this point of emotional and mental acceptance, but I'm ready to take on the challenge. I filled out the initial paperwork and mailed it today and my doctor's office has scheduled all the testing (EKG, ECG, chest x-ray, abdominal ultrasound, etc.) over the next month. My brother is interested in donating a kidney to me and he happens to be the same blood type as I am (although we don't know if he's a tissue/type match) my mother also has the same type. We'll see what happens next.

It will be a couple of months before I meet with the people at the transplant center. It gives me more time to get used to the idea of going through a major life-changing surgery.

April 11th

Krissi's picture

Goodbye to My Good Friend Steven C.

My friend Steven C. died on Saturday, April 8th. He finally gave in to kidney failure (as well as multiple organ and system failures) and is now at peace. I'm sad.

Happier Times - Steven C. and Me on Halloween 2005

April 7th

Krissi's picture

New Dry Weight?

Tagged:  

It seems I've lost some actual weight over the last couple of months. Lately I've been leaving dialysis still feeling a little puffy around the ankles (unusual for me, even after a weekend to have enough water retention to notice) and short of breath in-between treatments. I've challeneged my dry weight the last two treatments and today I got down to a whole kilo below my previously established dry weight. I still left with mildy puffy ankles so I'm thinking I could've gone even a half-kilo lower. This means my dry weight is between 45.5 and 46 kilos (previously 47 kilos for almost 2 years) or 100 pounds. 100 pounds is a little scary!!! I've been trying to *gain* a bit of weight, not loose it.

Any suggestions on how to gain a few pounds?