While on vacation here in Flagstaff, AZ, my grandmother passed away in Colorado. This was not too unexpected, but it happened suddenly. She's been ill for several years. I have decided to go to the memorial service on Sat the 8th and have already re-arranged my flights to fly up to Colorado Springs and then home to Tampa from there on the 9th. The only situation I have to solve now is getting at least 2 more treatments (in Colorado) arranged. I guess I'll call my home unit tomorrow and ask them what to do. I've never had something like this happen where I've ended up in an entirely different place without pre-arranged dialysis. I'll have to cross my fingers and hope I can get a treatment on Wed the 4th and Friday the 7th... I feel stressed... and sad.
Archive - Dec 2004
December 30th
December 28th
Dialysis in Flagstaff
My first treatment (yesterday) in Flagstaff went well. Boy was I ready for dialysis after 4.5 days without. The center here is alright, but I do miss Bay Breeze (my home center). Dialysis at home becomes somewhat like a twisted family reunion three times a week... but, when you travel its like walking into the wrong family reunion but still trying to fit in. LOL I feel good and our vacation is going good. Now snow, yet :( but I'm still hopeful!
December 26th
Flagstaff, AZ VACATION!
We made it to Flagstaff, AZ. Happy Holidays, everyone! My first dialysis treatment here isn't until Tues at 1 PM. That will be the longest I've ever gone without a treatment (from Friday @ 6:30 AM to Tues at 1) so it makes me a little nervous. I feel OK so far and I don't feel fluid-overloaded. I've been careful so hopefully I won't have any complications. Its strange to know that no matter where I go, I'm still tethered to the machine for life. I'm OK with that, but it feels overwhelming at times.... stressful to think that no matter where I go or what I do my life still depends on dialysis. At least its pretty easy to travel and still get treatment. I'd hate to be stuck at home, not able to go anywhere.
December 14th
SCHOOL!
I've been talking about it in my other journal... but I should mention it here, too... I'm going back to school (again) starting Jan 10th! Yay me! Now I REALLY need a laptop so I can work on homework while I sit in the chair... besides, I'm sick of watching television all the time... I've been doing it every treatment for a year and I'm sick of early-morning TV!!! I'm so excited about school. I can't stop thinking about it :) I finally figured out what I want to be when I grow up - a Social Worker. This means I will have to get not only a BS degree, but also a Master's. I think it will take me 3 years, so long as nothing major goes wrong.
December 11th
Xmas Vacation
I'm looking forward to my vacation! This will be the first time I've traveled and not gone to a DaVita unit. The unit I'm going to is either a Gambro or Fresenius unit. Apparently there's only one dialysis unit in all of Flagstaff, AZ. And, wouldn't you know it? Zack (our re-use tech here at my unit) used to work there... its a small world, huh? He gave me the scoop on who to say 'hello' to and who to avoid, LOL. My first treatment in Flagsaff will be after a 4 day break. I get dialysis here at home on Xmas Eve (Friday) and then won't have my first treatment there until the next Tues. Waiting that long for a treatment always makes me nervous, but I've always gotten through OK. I guess I just won't be drinking too much apple cider or hot chocolate with peppermint schnapps :)
December 9th
Owie / "Constant Site" or "Buttonhole" needle access
The skin rash is really red and more irritated now. I asked the nurse if it looked too bad or infected and she said it didn't. Instead of sticking bandaids on we just used gauze and tape instead. I've also been using Neosporin to help keep it from drying out. I want to set up Constant Site / Buttonhole access to my fistula. I think this will give me a better opportunity to learn how to self-cannulate, even though I'm not left-handed. I'm also hoping this will help me make a case for doing short-daily home dialysis with one of the new home hemodialysis systems I've been researching. Today I watched a clinical video after my treatment that talked about the basics of "buttonholing". Our charge nurse Joan is going to get certified in establishing these types of accesses, and then sometime shortly after Christmas I get to be the first guinea pig at our unit to try it.
December 7th
Itchy Rash
I'm getting this itchy rash on my arm from the banaids and tape used during and after my treatments. One spot has turned into eczema, which I've had on other patches on my skin off-and-on throughout my lifetime. I'm surprised its taken this long for me to start being sensitive to the tape... usually my skin breaks out from even the slightest artificial anything applied to it (including makeup, perfume and some lotions...) I'm watching the rash closely to make certain it doesn't get infected or turn into something else.
DaVita is buying Gambro - YAY!
DaVita to Buy Gambro's U.S. Clinics for $3.1 Billion
December 5th
AAKP Xmas Get-Together
I wish we had more patients who would come to our get-togethers. It seems like mostly only board members show up. Tonight we had just two small tables of new people. Even some of the familiar faces I expected to see there didn't show.






