Proof that I have a new kidney!

I love my bottled water and now I can drink as much as I want!

I like water as much as the next guy (in fact, it's all I drink right now) but, oh, this photo breaks my heart. Beyond the fact that most bottled water isn't held to the same standards by the FDA as tap water, please, please tell me that you recycle! ;)

that looks exactly like my trash lol!

sorry for commenting since you don't me but i found you on the kidney community on livejournal.. i hope you dont mind..

i'm sorry you're body is hating you so much, i send all the luck i've got for you to feel better fast...

feel free to add me if you wish...

First, let me ask about the FDA thing. WHAT? More info, please. I've not heard that, but I don't doubt there is probably some truth to it.

I drink mostly SmartWater for the electrolytes that are added to it which I need, especially with my new kidney. Otherwise, I drink bottled water because I'm really really picky about the way water tastes. For example? See the big bottle in the middle of the picture that says "Zephyerhills?" That's not mine, I gag on the taste of it.

For me, its not a tap water vs. bottled water safety thing, its just a preference.

As for recycling - we have very few recycling centers close to our house. Additionally, our trash company doesn't provide recycling pick-up like most trash companies do (like in CA they REQUIRE you to recycle) So, to bluntly answer your question: No, we don't recycle. For us its not a matter of if we should or shouldn't (we should) but a matter of time and resources. I'm making no excuse as to the wrongness of it (having lived in California for four years I feel guilty every time I toss a soda can in the TRASH) I'm just being honest.

Hi the picture of all the water bottles! As I daydream into my (hopefully) very distant future I don't worry to much of the food restrictions...but the water/fluid restriction is scary for me. :)

I found out several weeks ago that I have stage 3 CKD and at first was told probably IGAN. While I was in a favorite chat room a friend of yours referred me to your site.

I started reading and my first thought was "this isn't the same disease as what I have, and with IGAN I may never reach ESRD" I kept comming back, reading your story and about the time you went back into the hospital my neph called me back with the biopsy results...he said FSGS. I go back to see him on the 5th to find out more info and start meds.

Same disease or not I just wanted to know that I've kept you in my thoughts and prayers since first comming to your site.

Keep getting better!

Hi Melissa and Welcome :)

When I think back to my earlier days after I'd found out about my FSGS I, too, was most worried about the fluid restrictions. I was used to drinking LOTS of water and couldn't imagine life NOT drinking it all the time. The closer I got to dialysis (and kidney failure) the more anxious I was about having to restrict my fluids.

I guess my anxiety about it faded after I started dialysis and had less and less urine output (and more and more fluid retention). Its basically a mind-over-matter thing - When your kidneys don't work and you're not getting rid of fluid through urine, your body doesn't need more fluid because it already has enough. Being "fluid overloaded" is a much more uncomfortable feeling than not drinking as much, although its a difficult feeling to describe. Lets just say I only had to do it to myself once (i.e. overload on fluids to the point that I was sick) to make sure I didn't want to make it the norm!

Keep in mind, too, that with FSGS you may never reach ESRD, either. I was lucky in that I had a very, VERY slow-to-progress form of FSGS. My body had a lot of time to adapt (more than 12 years) before I reached ESRD - and I had no real symptoms of any kind of chronic disease until about 2-3 years before needing dialysis. Additionally, FSGS CAN go into a 'remissive' state and I'm sure with recent drug developments this might be possible more often.

Go back in my blog entries (see the Archives section in the right-hand menu bar) and read from the older posts (before I was on dialysis) to see how I coped with the chronic disease part of FSGS... and whatever you do, keep up a positive attitude! I think that's what makes the biggest difference.

Thanks for the comment and I hope you keep visiting... and feel free to contact me personally if you need someone to talk to.


I just discovered your blog, too, and really enjoy it -- especially the photos post-transplant. Thanks for posting them.

However, I must clear up any myths about IGAN -- I was diagnosed with IGAN 3 1/2 years ago at 70 percent kidney function. I am now on the transplant list. I know some people think IGAN doesn't lead to ESRD, but often times it does.

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