It means so much to me that all of you took the time to send me hugs and good wishes on Facebook, Twitter and Tokbox and in all the other ways we stay close as friends.
This is such a scary thing for me. It feels like I'm re-living the entire experience as a young teenager when I first found out I had a serious chronic illness... the only difference is that I now know EXACTLY what road lies ahead.
I'm so very hopeful that things will proceed smoothly and that if my life's destiny to somehow find health that it will happen quickly (please!!) If my destiny is to continue bearing this burden, then I wish for the wisdom, strength and courage I've witnessed from many of my peers: The ability to be chronically happy and chronically positive.
I will keep all of you updated as best I can. In the meantime, I'm spending the next 3 weeks in NJ / NYC / PA with very close friends... I'm not quite there (I'll arrive tomorrow!) but I already feel surrounded by all of you...
Thank you - I love you all.
K
hi,
Really hope everything keeps stable for you and get to live your life for aslong as possible.
It's great to see someone else recording what they are going through.
I was 20 when i found out I had FSGS was really weird as I have never been ill in my life and I had been playing sport at international level then all of a sudden I got THIS! I managed to go about 4 months on loads of pills and keep my life normal then creatinine went from 300 to 1001 in a week! so straight on dialysis, i wanted to die. during this time I was still working, then transplant in novmeber 08 from my dad and so far its all going well.
Im on twitter and facebook and my transplant website can be found here
http://www.iamkreative.co.uk/transkid
hope everything goes well for you.
kevin.
hi,
Really hope everything keeps stable for you and get to live your life for aslong as possible.
It's great to see someone else recording what they are going through.
I was 20 when i found out I had FSGS was really weird as I have never been ill in my life and I had been playing sport at international level then all of a sudden I got THIS! I managed to go about 4 months on loads of pills and keep my life normal then creatinine went from 300 to 1001 in a week! so straight on dialysis, i wanted to die. during this time I was still working, then transplant in novmeber 08 from my dad and so far its all going well.
Im on twitter and facebook and my transplant website can be found here
http://www.iamkreative.co.uk/transkid
hope everything goes well for you.
kevin.
I feel honored and so lucky to know you.
I feel honored and so lucky to know you.
I'm pulling for you.